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My new homepage!!!!!!!!!!!

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My new homepage!!!!!!!!!!!

Postby Cheryl Anna » Tue Jul 06, 2004 8:33 pm

This does not have to do with Jim Carrey.<!--EZCODE EMOTICON START :smokin --><img src=http://www.ezboard.com/images/emoticons/smokin.gif ALT=":smokin"><!--EZCODE EMOTICON END--> <br><br>I now have a homepage-which includes a poem. It is in favor of increased stem cell research and the end to the suffering and pain of all people with one of the many varieties of brain disease including my own, Cerebellar Ataxia. <br>Stem Cell Research seems the way to a cure.It would be nice to walk again. I have had this dumb neurological disorder for 22 years now-and I'm still waiting for a cure!!!<br><br><!--EZCODE LINK START--><a href="http://hometown.aol.com/cherylshasta/myhomepage/profile.html" target="top">my homepage</a><!--EZCODE LINK END--><br><!--EZCODE EMOTICON START :rollin --><img src=http://www.ezboard.com/images/emoticons/roll.gif ALT=":rollin"><!--EZCODE EMOTICON END--> <br>I do welcome constructive criticism and suggestions. This is my first homepage-so I am learning. I would love to hear suggestions about how I can get more people to see this homepage.<br>I think that I should speak up about this instead of just passively waiting around (which is boring).<br><br><!--EZCODE EMOTICON START :hat --><img src=http://www.ezboard.com/images/emoticons/pimp.gif ALT=":hat"><!--EZCODE EMOTICON END--> <!--EZCODE EMOTICON START :hat --><img src=http://www.ezboard.com/images/emoticons/pimp.gif ALT=":hat"><!--EZCODE EMOTICON END--> <p></p><i>Edited by: <A HREF=http://p074.ezboard.com/bjcomessageboard.showUserPublicProfile?gid=cherylanna@jcomessageboard>Cheryl Anna</A> at: 7/6/04 9:48 pm<br></i>
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Cheryl Anna
Eternal Sunshine of the Spotless Mind
 
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Good start to a great site

Postby beebee » Tue Jul 06, 2004 8:56 pm

Your personal approach and perspective is what will make your page unique. You might want to show a picture or diagram on someone who lives with Ataxia. If there is a support organization, perhaps they have a photo you could use. It is good to see you doing something positive with your life and experience (that reminds me, what am I waiting for?). Looking forward to more... <p></p><i></i>
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Re: Good start to a great site

Postby Cheryl Anna » Wed Jul 07, 2004 7:17 pm

Thanks!!! Good suggestions. <p></p><i></i>
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Cheryl Anna
Eternal Sunshine of the Spotless Mind
 
Posts: 522
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Location: Glendora, California

2 poems

Postby Cheryl Anna » Thu Jul 15, 2004 11:14 pm

My homepage includes the poem "Crack the Code".
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Cheryl Anna
Eternal Sunshine of the Spotless Mind
 
Posts: 522
Joined: Wed Jun 25, 2003 6:58 pm
Location: Glendora, California

Postby Cheryl Anna » Fri Aug 13, 2004 12:13 am

My homepage now includes a link to my journal article-"Living in a Cloud". It describes a day in the life of a person with Cerebellar Ataxia: taking the dog to the vet, trying to walk across a room-including the resulting fall, walking the dog. It is not entirely light reading-it is a 2,000 word chronicle of exactly what it is like to live with a disability. READ IT!

In the past month, it's long and it took me a while to type plus I was off the computer for over two weeks, over 20 people have seen it-which makes me very happy. I am helping to spread the word about Cerebellar Ataxia.

My neurologist, Dr. Susan Perlman at UCLA, was on the channel 7 news at 6:00 on August 10, 2004 talking about all of the forms of ataxia. Now, that's encouraging.

You can also get my journal article "Living in a Cloud" if you go to AOL hometown and type the title of the jounal.
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Cheryl Anna
Eternal Sunshine of the Spotless Mind
 
Posts: 522
Joined: Wed Jun 25, 2003 6:58 pm
Location: Glendora, California

Good reading

Postby Cheryl Anna » Fri Aug 13, 2004 10:32 pm

I have had three poems published previously by GENERATIONS(A publication of the NATIONAL ATAXIA FOUNDATION). I was pleased and honored to have ihis article published also. Today, it has been read by ovr 30 people and I do hope that more people read it.

It is educational. After all, over 150,000 people in the United States (not to mention the world) have this disability. More people should know about it.

The ending is similiar to that in GENERATIONS, but in the magazine it was edited for space. The title is the original "Living in a Cloud",

And--yes, the fall was real, I have the scar over my left eye- to prove it.
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Cheryl Anna
Eternal Sunshine of the Spotless Mind
 
Posts: 522
Joined: Wed Jun 25, 2003 6:58 pm
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my journal

Postby Cheryl Anna » Sun Aug 15, 2004 6:31 pm

http://journals.aol.com/cherylshasta/LivingInACloud/

This is my journal. The link works.
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Cheryl Anna
Eternal Sunshine of the Spotless Mind
 
Posts: 522
Joined: Wed Jun 25, 2003 6:58 pm
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my homepage is on page 2 of a search engine

Postby Cheryl Anna » Tue Sep 07, 2004 1:29 am

My homepage is on page 2 of a search for "Cerebellar Ataxia". This means it is very popular (Yeah!). The journal article "Living in a Cloud" has been read 84 times. (That's thrilling!!)
I want to note, that Cerebellar Ataxia, as is true of many of the ataxia's, is not a neuro-muscular degenerative disorder. It is a neurological degenerative disorder. Cerebellar Ataxia is not covered by MDA, but they do help a lot of other people-and I applaud their work. One of the ataxia's, Friedreich's Ataxia, is covered by MDA Friedreich's Ataxia has a childhood onset, in most cases, and does not involve Cerebellar Degeneration, in 98% of cases. I am happy that they have MDA funding, but wish every one with a form of ataxia had funding for wheelchairs, etc. I wrote to MDA twice, and even Jerry Lewis, but they can't change their policy. I mean-they cover 41 neuro-muscular degenerative disorders.
Who knows-maybe the popularity of my Cerebellar Ataxia homepage might change the MDA policy and make theings easier for those with a form of ataxia who can't afford a wheelchair, etc, (I have a wheelchair, so I'm O,K,)
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Cheryl Anna
Eternal Sunshine of the Spotless Mind
 
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